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Banana Buttons..?

Musical bananas using a device that converts everyday objects into interactive switches.  Alexander was disappointed by the silence from the banana at the grocery store afterwards….

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First Bicycle Ride [VIDEO]

Alex’s first experience on a bicycle!  We were totally surprised by his ability to continue the momentum by pushing with his legs.  

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Camp Gizmo here we come!

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Swinging

We tried out the new swings installed at the Rec center today!  I’m glad to see this push to include children with disabilities into the recreational facilities.  Alex had a blast!

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Dr Visits

Last week we had the first two doctor visits since receiving the SMA diagnosis.  First was the pulmonologist.  Pulmonologists specialize in the treatment of lung diseases.  SMA patients have many complications due to the atrophy of muscle that allows them to breathe.  Visiting a pulmonologist is vitally important to keeping him alive.  We met with a doctor […]

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The Beginning

Spinal. Muscular. Atrophy.  A combination of words that we had never previously recognized as a single phrase representing a condition.  Those were the words that kept floating to the top of every list of searches when we were desperately looking for answers.  “Baby not bearing weight on legs,” “sitting but not crawling,” “floppy baby reasons.”  Search after […]

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