Frustration doesn’t even come close to describing the level of emotion I have been feeling lately.  The journey to getting Alexander treated has tested our patience, wrecked our emotions, and induced anger towards an overly complicated and cruel process. We were elated to find out the FDA approved Spinraza for the treatment of SMA shortly Read more about Frustration[…]


We tried out the new swings installed at the Rec center today!  I’m glad to see this push to include children with disabilities into the recreational facilities.  Alex had a blast!