fbpx

Home / Blog

Action for Alex

Community
835

Alexander is an amazing little boy who was diagnosed with Spinal Muscular Atrophy type 2.

Action for Alex

Action for Alex

3 days 12 hours ago

Alex is excited that the prize for this years Santa’s Gift Bag Raffle keeps growing! The prize includes the following gift cards: $100 Walmart, $50 Apple, $50 Lowe’s, $25 Applebee’s, $25 Shell, $25 Starbucks, (2) $25 Bob Evans, (3) $15 multi- Restaurant (can be redeemed for Olive Garden, Longhorn, Cheddars etc). And just added: $25 JCPenney and $25 Cracker Barrel !!
A Pioneer Woman Programmable slow cooker and an acrylic pour painting rounds out Santa’s gift bag this year!
Tickets are $3.00 each or 2 for $5.00 or 10 for $20 and can be purchased from Kandi Boggs Jamie Boggs and Debbie Frlend
We will have a link up sometime tomorrow to purchase tickets online, so check back for that!

Action for Alex

Action for Alex

6 days 15 hours ago

It's that time of year again! Each year we raffle off the contents of Santa's Gift Bag to a lucky winner! They make great gifts for family and friends and we absolutely ❤️ delivering the gifts to the lucky winner each year!

This year's Bag is filled with $370 in gift cards, a Pioneer Woman 7-qt slow cooler, and a beautiful acrylic pour painting! Perfect to share with family and/or enjoy yourself.

Raffle 🎟️'s are $3 each, 2 for $5, or 10 for $20 😮. Alex will be drawing a winner LIVE on December 17th!

Claim your tickets now!

This year's proceeds address going towards the 2020 Cure SMA Conference in Orlando, FL 🏰!

Jamie Boggs Kandi Boggs Debbie Frlend

Action for Alex

Action for Alex

1 week 1 day ago

Alex's first Spinraza shot EOB from employer-provided insurance. Unreal.

Kandi Boggs Jamie Boggs

Action for Alex

Action for Alex

1 week 6 days ago

Happy Thanksgiving!! 🦃🦃

Action for Alex

2 weeks 14 hours ago

Action for Alex shared a link.

Action for Alex

2 weeks 2 days ago

FDA Grants Priority Review to Genentech’s Risdiplam for Spinal Muscular Atrophy

Filing submission includes 12-month data from pivotal FIREFISH and SUNFISH trials in a broad population of people living with Types 1, 2 or 3 SMA

www.gene.com/media/press-releases/14825/2019-11-24/fda-grants-priority-review-to-genentechs

Action for Alex

Action for Alex

2 weeks 4 days ago

Someone woke up with a case of bed head this morning #crazyhair 😆
We will be posting later this week about our upcoming Santa’s gift bag raffle! Hope everyone enjoys their weekend.

Action for Alex

Action for Alex

3 weeks 3 days ago

Sorry I haven’t been posting much recently. Alex’s older brother has had some health complications requiring many trips to Morgantown and a spinal surgery. Hopefully things have settled down and life will be a little less chaotic.
Alex has been doing GREAT!! He continues to amaze us with his big brain and is so fun. He is currently driving himself around the house pretending to be a #ninjaturtle. #mutantsrule
Kandi Boggs

Action for Alex

1 month 6 days ago

Alex did great with his sleep study! #thiskidrocks We won’t know results until the doctor calls. Now we are heading home from Columbus to pick up the older brothers and then heading to Morgantown tonight for big brother Owens surgery first in the morning. #alwaysontheroad #busybusybusy

Action for Alex

Action for Alex

1 month 1 week ago

Alex is all wired up for his sleep study. He has been a star patient so far!! Hoping he sleeps well 🤞
Kandi Boggs

This feed was generated from Facebook.com/actionforalexander.